Sunday, November 4, 2012

11/4/2012 - Over 14 weeks since Cletus' last seizure!!

11/4/12 - I can't believe it has been over 14 weeks since Cletus' last seizure, I honestly never thought he would go this long without one.  The doctors even said that we should expect Cletus to always have seizures and one of our goals was to get the seizure activity down to maybe one every one or two months but 14 weeks and counting???  This is really incredible! 

I again must state that I am unsure if Cletus is having small focal seizures.  For example, Cletus, Magnum, and I took a ride to the vet on Friday for Magnum to get some shots and Cletus had his head out the window as normal, but instead of looking forward he was just staring down at the road.  It took me calling his name about 8 times before he snapped out of it and brought his head inside to give me a lick on the cheek.  I can't say that this was definitely a focal seizure but it was weird.  Then again, I sometimes get caught in thought and just stare at nothing so maybe he was deep in thought (joking, Cletus is smart but I don't think he was making a shopping list in his head).  I thought that maybe it was the lines in the road he was staring at so I switched lanes and that did not snap him out of it.  I am probably reading too much into it as he did not show any signs of stress, not knowing where he was, etc which usually happens with seizures.  Being that we have not confirmed any seizures, I am sticking with 0 seizures in the last 14 weeks and 2 days.

If anyone can help us get Cletus' story into any magazines, articles, blogs, web pages, on TV, radio, etc, please let us know or contact those sources about Cletus.  Cletus and I do not mind doing interviews or attending groups, educational workshops, etc to bring attention to schizencephaly in animals or humans.  We want to do anything we can to teach and bring attention to the veterinary and medical community about schizencephaly.

Love to all,

Doug and Cletus

NOTES:
The more exposure we can get for Cletus, the more likely it is that we can help other animals out there suffering from schizencephaly. Cletus can't be the only one with this condition. Animals must be getting misdiagnosed and dying from schizencephaly due to vets not understanding what they are dealing with. Help us get the word out about Cletus and schizencephaly.

DONATE:
If you can, please donate to Cletus' campaign http://igg.me/p/217159

HELP GET THE WORD OUT:
Please help me to get the word out about Cletus and schizencephaly. Contact your local news organization about Cletus or have your local news organization contact me directly at dsilber27@hotmail.com

ELLEN DEGENERES:
Please help us by contacting Ellen through FB and tweet through the avenue below...

Submit Cletus' story to Ellen for us to potentially be on her show: http://ellen.warnerbros.com/show/respond/?PlugID=432

http://www.ellentv.com/be-on-the-show/10/

http://www.ellentv.com/

Tweet her: http://twitter.com/TheEllenShow/

STATISTICS:
As far as Cletus' doctors are aware of, Cletus has the only known reported case of open lipped schizencephaly in a canine. The key word here is reported. Most vets are not aware that schizencephaly exists or they are not aware that this condition is possible in an animal. Cletus is living proof of this possibility.

According to the Humane Society of the United States, there are 78.2 million dogs in the U.S. (http://www.humanesociety.org/). Some sites state that schizencephaly affect 1.54 per 100,000 people. According to rightdiagnosis.com, schizencephaly affects 1 in 2719 people or 0.04% of the population (http://www.rightdiagnosis.com/lists/preval.htm). The fact is that no one is sure how many people schizencephaly truly affects. If we assume these same statistics in dogs, it equates to up to 31,280 dogs out there with schizencephaly in the U.S. alone.

THANKS:
Cletus and I want to thank the following Websites/Magazines/TV Stations/Etc for sharing Cletus' Story:
- ABC TV affiliate WCJB TV20
- Aplacetolovedogs.com
- Dawgbusiness.blogspot.com
- Experienceproject.com
- Fakeitfrugal.blogspot.com
- Houndgirl.com
- Jcagain.com
- Lovewhatsmissing.com
- Movementforhope.org
- News-pics-videos.com/schizencephaly-diagnosis
- Picturesofdogs.net
*** If I missed anyone, please let me know, thanks***

Thank you for your support,

Doug & Cletus

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